Outpatient vs inpatient
After three 5 day rounds in the hospital, I decided to ask if I could do outpatient (I need sleep and my own food). My oncologist agreed I could. What a mess that followed:
1. The pharmacy may not have enough meds
2. Your white blood cell counts are low
3. Your chemo regimen doesn't exist in our system so we have to have it added before when can send it in for insurance approval
4. Your insurance will only allow one of the required meds to be ordered from a company out of state, that company doesn't have enough so they will over night what they have and order more Monday and overnight them
5. Surprise, you now have a copay for this
6. Be prepared for four 8am-6pm days in the clinic
7. This oral med from out of state may cause more nausea than normal and the pill tastes horrible, but you have to take 48 pills in 4 days
******congrats you can do outpatient!!!!
Like I said, what a mess. I like to do things as proactively as possible, that is why I asked about outpatient 2 weeks ago, but what do I know. Things could be worse, I just feel a lot of this could have been avoided last minute on a Friday afternoon. My nurse is great and gave me a heads up on as much of this as she could. I also understand a lot is out of their control. Anyway, with all this time next week hooked up to a few pumps, I will have plenty of time to get back reading books and hopefully more blogs :)
I will have another scan after this round of chemo next week. I read an article about a sarcoma vaccine that is still being used in a clinical trial in Seattle, so I'm trying to get ahold of the research coordinator there. I've tried a few messages this week, but will continue to ask to see if I would be a candidate for this. I was not a candidate for immunotherapy, so I pray this is completely different.
(Please excuse any typos or run on sentences, I'm trying to keep my 14 month old entertained with Mickey Mouse, cheerios, and pumpkin spice bread, but he wants my iPad, iPhone, and my coffee haha!)
Art Prize 9 in Grand Rapids, MI is in full swing, so I will be brave today and make my way down there with my sweet Mimi (my granny), especially to visit "Crowns of Courage" at the DeVos Place. She has been such an amazing support; she is a true angel and I'm so excited to be able to take her to see it. It's supposed to be 94 degrees today, Lord help me to not overheat. I may not have any hairiness my head, but a silicone sleeve up to your thigh to keep your leg on tends to be pretty hot (temperature wise). #prosteticproblems
I hope you have enjoyed- until next time my friends...
1. The pharmacy may not have enough meds
2. Your white blood cell counts are low
3. Your chemo regimen doesn't exist in our system so we have to have it added before when can send it in for insurance approval
4. Your insurance will only allow one of the required meds to be ordered from a company out of state, that company doesn't have enough so they will over night what they have and order more Monday and overnight them
5. Surprise, you now have a copay for this
6. Be prepared for four 8am-6pm days in the clinic
7. This oral med from out of state may cause more nausea than normal and the pill tastes horrible, but you have to take 48 pills in 4 days
******congrats you can do outpatient!!!!
Like I said, what a mess. I like to do things as proactively as possible, that is why I asked about outpatient 2 weeks ago, but what do I know. Things could be worse, I just feel a lot of this could have been avoided last minute on a Friday afternoon. My nurse is great and gave me a heads up on as much of this as she could. I also understand a lot is out of their control. Anyway, with all this time next week hooked up to a few pumps, I will have plenty of time to get back reading books and hopefully more blogs :)
I will have another scan after this round of chemo next week. I read an article about a sarcoma vaccine that is still being used in a clinical trial in Seattle, so I'm trying to get ahold of the research coordinator there. I've tried a few messages this week, but will continue to ask to see if I would be a candidate for this. I was not a candidate for immunotherapy, so I pray this is completely different.
(Please excuse any typos or run on sentences, I'm trying to keep my 14 month old entertained with Mickey Mouse, cheerios, and pumpkin spice bread, but he wants my iPad, iPhone, and my coffee haha!)
Art Prize 9 in Grand Rapids, MI is in full swing, so I will be brave today and make my way down there with my sweet Mimi (my granny), especially to visit "Crowns of Courage" at the DeVos Place. She has been such an amazing support; she is a true angel and I'm so excited to be able to take her to see it. It's supposed to be 94 degrees today, Lord help me to not overheat. I may not have any hairiness my head, but a silicone sleeve up to your thigh to keep your leg on tends to be pretty hot (temperature wise). #prosteticproblems
I hope you have enjoyed- until next time my friends...
Henna from a Crowns of Courage gathering this summer
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